For innovative technologies to bring about rapid progress in neurodegeneration research, emerging ethical concerns around patient data privacy, bias, and informed consent must be addressed. Addressing these issues head-on is critical to building trust and ensuring responsible use. Patients, policymakers, researchers, and industry all play a role in shaping how these technologies are implemented, but progress will require merging these perspectives.
Priority 3 will proactively tackle these challenges by creating a consensus-driven ethical framework that promotes innovation while protecting patient rights.
Specifically, Priority 3 will involve the following programs:
Ethical Technology Roundtable to convene different stakeholders—patient advocates, regulators, researchers, and foundations—to identify and resolve key ethical issues in technology-driven neurodegeneration research.
AI Ethics Center to create a dedicated hub at a leading academic institution to focus on highly relevant research projects and develop practical solutions to the ethical challenges that emerge due to the growing use of innovative technologies in neurodegeneration research.
By ensuring that ethical oversight is integrated into technology-driven advancements, Priority 3 will build public trust, ensure fair and safe applications of various technologies, and accelerate responsible progress in the field.
