The 10,000 Brains Project is proud to share a newly published paper co-authored by Patrick Brannelly and Mukta Phatak: “Insights and priorities from the 2025 private funders’ Parkinson’s disease and related disorders large footprint data interoperability summit.”

The paper summarizes key findings from the 2025 Private Funders’ Parkinson’s Disease and Related Disorders (PDRD) Data Interoperability Summit, which brought together technical leaders from North American private funders and research organizations working across large-scale neurodegenerative disease data initiatives.

The publication highlights a central challenge facing the field: while large datasets have enormous potential to transform research, persistent barriers to data access, interoperability, governance, privacy, and reuse continue to slow progress. Using the framework of FAIR principles—Findability, Accessibility, Interoperability, and Reusability—the summit participants identified a set of prioritized recommendations and near-term actions to strengthen the neurodegenerative data ecosystem.

The paper underscores a growing consensus across funders and research organizations: accelerating progress in Parkinson’s disease and related disorders will require not only generating more data, but ensuring that data can be shared, connected, and used effectively across traditionally siloed domains.

Read the paper